- The ALS Association (ALSA) is a national not-for-profit organization providing help to those facing the disease through research, patient and community services, public education and advocacy.
- Access to ALS Support Groups for patients and caregivers are available through the ALS Association.
- The ALS Untangled group includes neurologist-published reviews of alternative and off-label treatments for ALS.
- Patients Like Me is an online community committed to making a difference for patients and their health.
- ClinicalTrials.gov offers information about clinical drug trials in the United States.
- Department of Veterans Affairs benefits. ALS has been listed as a disease entitled to presumptive service connection after military service. The ALS Association has posted information about Service Connected Benefits. For more information, contact [email protected].